April 2021

I have been experimenting with really coming in close to Sarah when she gets upset. I don’t always have the mental or emotional space within myself to do this, but when I do it seems helpful. I verbally acknowledge what Sarah is feeling and say that those feelings are ok. Sometimes she gives a quiet… Read more »

Last Sunday night, Sarah had the first seizure she has had since being on anti-seizure medication. The first seizure in roughly two years. It lasted less than a minute and she was mostly herself afterwards except for having a headache. Her neurologist increased the dose of medication so I’m hopeful things are back under control…. Read more »

I have started reading a book called The Yes Brain by Daniel Siegel and Tina Payne Bryson. It has inspired me to think differently about Sarah and how to help her/us. It has become increasingly obvious that she really has very little capacity to hear “no” without going into full-stress fight mode. We need to figure out… Read more »

The April Fool’s joke for us was a notable amount of snow. We made a huge snow mouse that is taller than the kids, and Sarah enjoyed rubbing noses with it. Carl also got to go cross-country skiing. Yesterday Amy orchestrated a talent show and asked me to be the judge. I hate judging among… Read more »