September 2022

This has been one of the craziest weeks I can remember. Sarah has yet to attend school for a full week since school started at the end of August. This week she missed two days in full and one partially. I kept her home on Monday because, though her covid test was negative, she was… Read more »

This past week was a much better week and I’ve been feeling great overall. I had a helpful talk with Samahria (the original Son-Rise mom). I said all of the things that I hadn’t wanted to fully admit to anyone about just how deeply I could resent my sweet Sarah for her condition, her behaviors,… Read more »

Last weekend as we finished our camping trip, we had one more afternoon at the beach. It was wet and rainy and not all that warm, but we still had a good time. Amy, with some help from Carl, made herself a mermaid tail out of sand. Sarah wandered over to a park sign and… Read more »

Five. That is the number of medications Sarah now takes every morning. Then three every evening. A week ago it was three in the morning and two in the evening. Plus one in the afternoon. So it’s not really that much of a jump but it feels like a lot, especially when camping as we… Read more »