Sarah Rise Weekly Updates

This has been one of the craziest weeks I can remember. Sarah has yet to attend school for a full week since school started at the end of August. This week she missed two days in full and one partially. I kept her home on Monday because, though her covid test was negative, she was… Read more »

This past week was a much better week and I’ve been feeling great overall. I had a helpful talk with Samahria (the original Son-Rise mom). I said all of the things that I hadn’t wanted to fully admit to anyone about just how deeply I could resent my sweet Sarah for her condition, her behaviors,… Read more »

Last weekend as we finished our camping trip, we had one more afternoon at the beach. It was wet and rainy and not all that warm, but we still had a good time. Amy, with some help from Carl, made herself a mermaid tail out of sand. Sarah wandered over to a park sign and… Read more »

Five. That is the number of medications Sarah now takes every morning. Then three every evening. A week ago it was three in the morning and two in the evening. Plus one in the afternoon. So it’s not really that much of a jump but it feels like a lot, especially when camping as we… Read more »

After a certain number of weeks of writing about things feeling hard, I start feeling self-conscious as if I really need to write more uplifting and inspiring things. Then I remind myself that the point of these updates is to be honest and true and to help the future me remember all of this parenting… Read more »

Amy started 6th grade! The bus was 12 minutes late on her first morning, meaning she arrived at school late. While not penalized for such, she was disappointed to be late on the first day. Little did we know the lateness this bus could truly achieve. She was 50 minutes late coming home!! For the… Read more »

Amy had camp this week. As in, camp that was not at our house and camp that was with multiple campers. It was an art day camp in walking distance from our house, and Amy was in heaven because her best friend was there too. They walked too and from camp each day together, got… Read more »

Some weeks seem to encompass an entire year of experiences and emotions. This has been one such week. We have been at our mountain house and overall it has been wonderful, but Sarah and I have also had some really struggly times. We watched the movie Inside Out again which provided excellent fodder for future… Read more »

This morning I almost forgot it was Sunday. That is part of why I’m writing later than usual. The other reasons are just taking care of various household things and doing “chirp chirp” snuggles and naps with Sarah. Sarah’s latest thing of seeming to be extra sensitive to being touched and asking us to apologize… Read more »

Carl’s suitcase made it home! It helped that he went to the airport in person to ask about it and then was given a phone number that actually reached a live person. That person did something to get the search for the bag reactivated and the bag arrived at our house two days later. Last… Read more »