Sarah Rise Weekly Updates

This past week we had 25 1/2 hours of official Sarah-Rise time and lots of lovely moments. One afternoon Sarah and Amy were playing together, sort of hugging and wrestling at the same time. Sarah spontaneously gave Amy a zerbert (aka a raspberry) on her cheek. During a SR session with me she promptly reciprocated… Read more »

This update is for the past two weeks. We got 23 hours 2 weeks ago and then this last week was 15 hours and 40 minutes. Pretty amazing that Carl and I can leave the country for a week and the program still continues. Everyone is alive and well, and Carl and I had an… Read more »

This week we got roughly 29 hours. We’ve had some exciting moments, but the salient feature of this week for me has been lots of thinking. I have been thinking a lot about time. We are giving Sarah the gift of our time. Our Amy volunteers give the gift of their time. What do I… Read more »

This week we got 13 hours and 45 min. This past month has been rough in terms of getting regular hours. It was just a month ago that most of us were dealing with a tummy bug; 2 weeks ago Sarah had the episode of anaphylaxis, and now this past week Sarah, Amy, Sonia, and… Read more »

This week we had 28 hours and 15 minutes of official SR time, plus preschool and gymnastics. It had been a couple weeks since Sonia last went to preschool, since I did the previous two weeks, and she noticed a big improvement in how attentive Sarah was and how little she needed to be redirected…. Read more »

This update is brought to you by the letter P, as in P is for “Pecan.” Or as in “pecans cause Sarah to go into anaphylaxis.” We knew from previous allergy testing and experience that Sarah has a mild peanut and walnut allergy resulting in a runny nose and itchy eyes and face for 30… Read more »

This week we got 31 hours and 15 minutes of official SR time plus preschool and gymnastics and uncle A. visiting. Usually it is Sonia accompanying Sarah to preschool but this time it worked with my schedule so that I could attend. There were moments of thinking that if you didn’t know she had special… Read more »

This week we had a stomach bug sweep through the family in varying degrees of severity. For most of the week Sarah was sick and then when she was better I was sick. Sonia was very sick for most of the week. And Amy had a mild cold. So… we got 2 hours and 45… Read more »

This week we got 32 hours. The number of hours continues to be an interesting thing for me to contemplate. I think some of why our program has been successful is my drive to get hours. That said, I want to make sure that I can track it and notice it gently and loosely, without… Read more »

This week we got 32 hours and 45 minutes. On Tuesday Sarah visited the preschool connected to Amy’s daycare. It is for 3-4 year olds and the rest of the students are typical kids. Sonia was Sarah’s personal attendant. The morning went very well overall and helped point out some things to focus on in… Read more »